Thursday, October 30, 2008

Just a quick one.

It's been a minute since my last post and for that I deeply apologize. I know there are literally...um...a few of you who actually check this blog regularly looking for pictures, stories, inspiration...knowledge...advice. I don't know. What are you looking for, anyway?
Regardless, we're prepping for a big weekend around Camp Sweatpants. Kate will be at work Friday night leaving Emily, Moose, Piper and I to handle all candy distribution. Sunday will be a nice day with family and friends as Ems gets Christened at the same church where Kate and I got married. Saturday we might hit Bed, Bath & Beyond....I don't know if there'll be enough time!
I promise plenty of good pictures next week.

Saturday, October 11, 2008

Two months? Really?

It's true. Emily turned two months old on Thursday. (On a completely unrelated note, we've clearly turned a corner. It's just after 10 pm on a Saturday night and I'm on the computer. Kate's feeding Ems on the couch. The only one drinking out of a bottle right now is the kid. I mean, what the hell? How did we get here? But I digress.)
Two months is fun. She's smiling when we come into view. She's holding her head up. She's discovering her hands and feet. But it's not all fun and games. Her gas has reached a new adult level. Between Daddy, Ems and Moose, it will be a small miracle if the house doesn't go up like a roman candle one day. Hard to believe more people don't stop by.
Of course, two months brings another doctor's appointment complete with three shots. Ems was not a fan. She let everyone know. 
Ah, but there's a light at the end of this particular tunnel. When Emily was born she was 22 inches long on her left leg and 19 on her right. This checkup showed she had grown a little over two inches on both sides. 
Now, in case you hadn't picked up on it yet, I am not a doctor. I know proximal femoral focal deficiency is a rare condition with various intricacies involved that are unique to each individual case. Her right leg will not catch up to the left without divine/surgical help. Still, I can't help but think that as long as her legs keep growing at the same pace, that's gotta be a pretty good sign.
Let's hope the real doctors agree.

Wednesday, October 1, 2008

Emily, the Cubbies and God.

Yes, they're all related. How, you ask? Well, settle in, Bubba and I'll tell you. 

As I was saying my goodbyes to the family this morning, Emily briefly woke up and looked up at me with a twinkle in her eye.
"Daddy, do the playoffs start today?" (Yes, she's seven and a half weeks old. She's our little prodigy. It's really something.) 
"Yes, Ems, they do," I replied. 
"I'm going to wear my new Cubs tee shirt 
today. And when you get home from work, we'll watch the game together." 
"That sounds wonderful. I can't wait."

It was quite a moment. Nice way to start the day. 

Moving ahead to this afternoon. The good Rev. Andy Fiddler stopped by to discuss the plans for Emily's upcoming baptism. While he was here, UPS rang the doorbell to drop off a package. I excitedly tore open the wrapping paper to discover the authentic Mark Grace Cubs jersey I had ordered last week. I had not expected it to arrive until maybe October 3rd at the earliest. "It's a beauty!" Exclaimed Rev. Fiddler.  I asked him to bless it. He chuckled. I wasn't kidding. 

My point is this...my prized jersey shows up prior to the Cubs' first playoff game while discussing the baptism of our daughter with a man of the cloth. 

I think it's a good sign. 

Go Cubs.   

Tuesday, September 16, 2008

You want a piece of me??


I was always pretty sure my child would grow up to be a bit of a smart-ass. A mouth that was a little too quick, no real filter to speak of, and, perhaps, a sense of humor that would make it almost tolerable.
However, Ems is apparently going to take things a step further. As these photographs clearly illustrate, my daughter will have no problem beating you senseless.

Sunday, September 7, 2008

Here we go...



Our beautiful daughter Emily was born August 9th, 2008 with a rare condition known as Proximal Femoral Focal Deficiency. Because we are fortunate to have so many caring family and friends, I figured this would be the easiest way to keep everyone in the loop. 
Now, my experience with blogs is minimal. My cousin Sarah has a blog and it is creative, well-written and always allows you to walk away feeling pretty good about life. I aspire to head in that direction as opposed to the majority of sites penned by ham-fisted, narcissistic d-----bags. I also aspire to limit my use of the word d-----bag. I make no promises. 
My point is, I want this to be about her. I will therefore try NOT to be pessimistic, skeptical, self-absorbed, opinionated, uninformed...um...long-winded...unfunny...you get the idea. Shut up.
Let's get to it. Remember the point of this? Emily. PFFD. Right. 
To those of us without a strong medical background, PFFD is a completely random condition where a child's femur (or thighbone...I'm not dumbing it down anymore. I can't. I won't!) stops growing or fails to grow at all while in Mom's tummy. 
Shortly after Ems popped out, we were told it looked like her right leg was shorter than the left, which was probably the result of hip dysplasia and not a big deal. When the doctor sat down in front of us two hours later, it was clearly a big deal. 
The next 48 hours were a bit of a whirlwind emotionally as we got to know our new baby while trying to stay out from under the cloud hanging over us. Our already fragile state was not helped by a visit to the orthopedist who, in telling us we needed more information before any decisions would be made, said that amputation and prosthetics would be a possibility. 
Dammit. 
Fast forward to Friday, September 5th. An ultrasound was done on Emily's leg and our doctor tells us that it looks like we'll have a number of options. Her hip joint is looking good and, if things develop, we may be able to surgically lengthen her femur. 
Naturally, there are pros and cons to this. The downside (of course I would list that first...get used to it.) would be that this process involves a number of painful surgeries followed by extensive rehab. The upside...two good legs. 
Our worst case scenario would be that her femur does not develop anymore and her hip joint takes a turn for the worse and this bionic leg lengthening process fails to be a possibility anymore. Should that occur, we would have to amputate her foot, construct a working hip and fuse her tibia, fibula, knee and femur to create one solid thighbone. Picture a regular leg with an amputation just below the knee. 
Here's the thing. Either of these scenarios make it possible for Ems to jump on a trampoline, go to the waterpark, play sports...pretty much do whatever it is she wants. She may never be able to jump all that high off her right leg, but, if she was going to take after her pops, that wasn't going to happen anyway. 
I won't go biblical and begin quoting Psalm 23 to you, but Kate and I are well aware that this will not be an easy road. There will be difficult decisions. There will be struggles. But we are surrounded by the best people. I can't imagine going through this without our family and friends. Emily will always feel loved and smart and beautiful and strong. And that is because of each and every one of you. 
Her next appointment is December 5th. Until then, we are going to enjoy each moment. Cuz this is one awesome kid.